• personal

    On Being Tired

    I first learned about ME when I was 10. I didn’t know much about the illness but I knew enough that I though it would be a fun thing to have. I mean any illness that gets you time off school must be good right? As it turns out ME or CFS or SEID or whatever you want to call it is not fun. It is rather boring. In fact it is mind numbingly boring. Yes, you would think being tired all the time is great fun. I mean it gets you away from all those boring adult responsibilities like work and school. But instead you’re stuck at home every…

  • personal

    On Negativity

    There is a person I want to talk about. I sort of look up to them in a way. It was because of this person talking about their medical issues that I realised what I was experiencing was not just the after effects of anaesthetics and could possibly be caused by something else. We were both diagnosed with CFS/ ME around the same time last year. However I was disappointed to hear this person say that they had a bad year partially because of being diagnosed with CFS/ ME and just being sick in general. Here is the thing. I don’t see the point of being negative about stuff. I…

  • personal

    Unemployed

    I have now been signed off work for 11 months. For 9 of those months I was receiving Employment Support Allowance. However at the end of July I received a letter stating I had to attend a “fitness for work” assessment. I could probably write an entire blog post about how terrible ATOS and their health assessments are, but suffice to say ATOS found me fit for work. However my doctor disagreed with their assessment and continued to sign me off. It now came to the point where the only thing I could do was appeal the decision and this is what I have been working on for the past…

  • art & design

    Tiny Watercolours

    Every time I visit the doctor I am asked how much time I have spent painting. Not because my doctor has a specific interest in my artwork but because it is a good way of telling how tired I have been in a specific month. The last two months have been particularly difficult and as a result of this I pretty much lost all desire to do any artwork. Over the last two weeks I have been working on a series of small watercolour paintings as a way to get those creative juices flowing again. It turns out this has been brilliant as not only am I learning more about…

  • personal

    I Am Not My Chronic Illness?

    If I were to summarise this blog it would probably go something like “the story of a girl studying graphic design”. But that was before I got diagnosed with a chronic illness. It is true that at one point I did study graphic design, but not for very long. If we want to get scientific about it we could say this blog has been around for 603 days and I was in college for 11% of that time (71 days to be exact). So this blog really isn’t about a girl studying graphic design. I AM MY CHRONIC ILLNESS? It might not affect the books I read or the movies…