• personal

    5 Things I Learned From Having CFS

    It has been almost exactly 2 years since I was diagnosed with Chronic Fatigue Syndrome so I thought I would do a little post sharing what I’ve learned from having CFS. Bedtimes are mandatory. In the past if I wanted to stay up till 3am reading fanfictions I could do that. Now I have a bedtime, it’s like I’m a child all over again. I need to be in bed by 9 and I need to get 12 hours of sleep otherwise I’m going to feel like death in the morning. I miss being able to stay up all night, I mean there is a very good chance I was…

  • personal

    Worrying, Books, and Moon Hitler

    I have been horribly unwell all week and as such haven’t been able to write any posts. So instead of writing something I thought I would share one of this week’s journal entries because journalling is a thing I do now. I don’t know why I worry so much, this time I was worrying about class because I missed 3 days. I mean I suppose it’s better to stay on top of things rather than let them slide, and I suppose it’s better to keep in touch with the college and let them know what’s going on is better than silence. WORRYING But maybe asking for help because I was…

  • personal

    Going Back To Education With A Chronic Illness

    So I did an update post a few weeks ago where I said that I was doing fine and wasn’t having any problems with my CFS… yeah I spoke too soon. Admittedly it did start out okay but the last three weeks have been awful. Its not been good at all, which is really annoying in a way because I’ve been enjoying the course. I like doing the work, but I’m tired all the time. I mean I’m tired all the time anyway (I don’t remember what not being tired feels like). But it has got to the point where it’s started to affect my mental health which is never…

  • personal

    On Being Tired

    I first learned about ME when I was 10. I didn’t know much about the illness but I knew enough that I though it would be a fun thing to have. I mean any illness that gets you time off school must be good right? As it turns out ME or CFS or SEID or whatever you want to call it is not fun. It is rather boring. In fact it is mind numbingly boring. Yes, you would think being tired all the time is great fun. I mean it gets you away from all those boring adult responsibilities like work and school. But instead you’re stuck at home every…

  • personal

    Unemployed

    I have now been signed off work for 11 months. For 9 of those months I was receiving Employment Support Allowance. However at the end of July I received a letter stating I had to attend a “fitness for work” assessment. I could probably write an entire blog post about how terrible ATOS and their health assessments are, but suffice to say ATOS found me fit for work. However my doctor disagreed with their assessment and continued to sign me off. It now came to the point where the only thing I could do was appeal the decision and this is what I have been working on for the past…